Explainer

OR Children’s HCBS Waiver

Published on
December 19, 2023
Last updated
February 29, 2024
Written by
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Katie Wilkinson
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The Children’s HCBS Waiver provides services to individuals with intellectual disabilities or developmental disabilities ages 0-17 years who meet an ICF/IID level of care.
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Overview of Oregon Children's HCBS Waiver

The Oregon Children's HCBS Waiver is a Medicaid program that assists children with intellectual or developmental disabilities. Aimed at individuals from birth to 17, the program's primary goal is to enable these children to live in their homes or community-based settings rather than institutions. This waiver emphasizes individualized care, incorporating personal choice and comprehensive service coordination.

Eligibility Requirements

Eligibility for the Oregon Children's HCBS Waiver hinges on several criteria, including age (birth to 17), residency in Oregon, and a diagnosed intellectual or developmental disability. Additionally, applicants must meet specific financial requirements and demonstrate a need for the level of care typically provided in an institution.

Services and Supports

The Oregon Children's Home and Community-Based Services (HCBS) Waiver offers services and supports designed to meet the needs of children with disabilities and their families. These services aim to support children in their home environments, foster their development, and enhance their quality of life. Here's a detailed look at the services provided:

  1. Behavioral Support Services: This includes assessment and intervention for children who exhibit challenging behaviors. Behavioral specialists work with the child and family to develop strategies that improve communication, social interactions, and overall behavior management. These services are crucial in helping children develop positive behaviors and coping mechanisms.
  2. Community Nursing Services: These services provide healthcare support for children in community settings, ensuring their medical needs are met outside of the traditional hospital or clinic environment. Community nurses can assist with medication management, routine health checks, and coordination with other healthcare providers.
  3. Environmental Accessibility Adaptations: This involves modifications to the home environment to make it more accessible and safe for children with mobility or other physical challenges. Adaptations can include ramps, grab bars, widened doorways, or specialized bathroom equipment to foster greater independence and safety.
  4. Family Training: This service educates family members on various care techniques and strategies to support their child's needs. Training can cover a wide range of topics, including managing specific health conditions, behavior management techniques, and how to use specialized equipment.
  5. Respite Care: Respite services provide temporary relief to primary caregivers, offering them a break from the demands of caregiving. This can include in-home respite care or short-term care in specialized facilities, ensuring the child's needs are continuously met.
  6. Specialized Medical Equipment and Supplies: This includes providing essential medical items for the child's daily care and health. These can range from simple aids to complex equipment like wheelchairs, specialized beds, or communication devices.
  7. Therapies: Therapeutic physical, occupational, and speech services are vital in supporting the child's development and functional abilities. Physical therapy focuses on improving strength and mobility, occupational therapy aids in developing daily living skills, and speech therapy enhances communication abilities.

These services under the Oregon Children's HCBS Waiver are tailored to the unique needs of each child, focusing on enhancing their ability to live and thrive in their home and community. The goal is to support the whole family, enabling them to provide the best possible care for their child in a home-based setting.

Compensation for Caregivers

Under the Oregon Children's Home and Community-Based Services (HCBS) Waiver, participant-direction allows families to have significant control over their child's care, including the hiring and managing of caregivers. Families can hire personal caregivers, including family members or friends, ensuring a personalized care approach tailored to their child's needs. Caregivers hired through this program receive compensation, with pay rates typically established by the waiver, though there may be some flexibility based on individual circumstances.

Employment formalities like background checks are required to maintain a safe and professional care environment. The waiver may also offer caregivers training to enhance their specialized care skills. Financial management services are available to assist families with the administrative aspects of employing caregivers, such as payroll and tax obligations.

This self-directed model grants families the flexibility to design care schedules and services that best suit their child's unique requirements while instilling accountability and oversight to ensure adherence to the child's care plan and compliance with program regulations. Overall, the Oregon Children's HCBS Waiver emphasizes family involvement and decision-making in the caregiving process, fostering a more effective and personalized care experience for the child.

Limitations and Challenges

While beneficial, the Oregon Children's HCBS Waiver faces challenges such as limited funding, which can lead to waitlists, and the complexities of coordinating multiple services to meet diverse individual needs effectively.

A Note from Givers

Considering the Oregon Children's HCBS Waiver for your loved one? Complete our form to explore eligibility for support in a program tailored to your loved one's needs.

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