5 ways to get paid caring for a loved one in

Tennessee

Published on
July 29, 2022
Last updated
March 27, 2024
Reviewed by
Published on
July 29, 2022
Last updated
March 27, 2024
Reviewed by
Presented by Givers
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Medicaid pays family caregivers in Tennessee

What is a Medicaid Waiver?

Medicaid Waivers are exceptions to Medicaid rules that allow states to offer programs that do not fit within the traditional boundaries of Medicaid. Every state has at least one waiver in place to allow the payment of family caregivers.

In Tennessee, the following Medicaid waivers are available with an option for caregiver pay:

  • Self-Determination Waiver Program: This program provides services to individuals with intellectual disabilities ages 0 or older and individuals with developmental disabilities ages 0-5 years who meet an ICF/IID level of care.
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Who are you caring for?

Medicaid programs and waivers can change over time, so it's important to consult the official Tennessee Medicaid website or contact the Tennessee Department of Human Services for the most up-to-date information on available waivers and eligibility requirements.

How does a Medicaid waiver work to pay family caregivers?

In most cases, to get paid by Medicaid as a family caregiver, you will work through a program called self-direction (also known as Consumer Direction, Participant Direction, or other similar names). Medicaid self-direction programs give people who need long-term care services more control over their care. Typically, when someone receives Medicaid-funded care, the government decides who will provide it and how it will be given. With self-direction, the person receiving care has more say in how care is provided and by whom, sometimes including family members.

While enrolling in self-direction can be complicated, it is a viable opportunity for caregivers to get paid for their work. Enrollment typically involves the care recipient going through an evaluation to determine their need for in-home care and obtaining approval accordingly. Afterward, you may need to complete training, acquire credentials, and secure "employment" with an agency responsible for processing payments for your billable hours. Once enrolled and hired by the agency, you must follow specific procedures to document and verify your work to get paid.

How much do family members get paid by Medicaid for caregiving in Tennessee?

Pay rates for family caregivers vary based on:
  • Program Guidelines: Each waiver program may have specific rules and regulations regarding caregiver compensation. These guidelines often outline the maximum hourly rate allowed. 
  • Local Wage Rates: Hourly rates are determined at the local zip code level based on a variety of factors.
  • Qualifications and Experience: Your qualifications and experience as a caregiver can impact your hourly rate. If you have specialized training or certifications relevant to caregiving, it may justify a higher rate. Additionally, your years of experience in caregiving can also influence your compensation. 
  • Level of Care Required: The level of care needed by the individual you are caring for can impact your hourly rate. Higher levels of care, such as providing medical assistance or supporting individuals with complex needs, may justify a higher rate compared to basic caregiving tasks.
  • Time Commitment: The number of hours you dedicate to caregiving can influence your hourly rate. If you are providing care full-time or have a significant time commitment, it may justify a higher rate compared to part-time caregivers. 
  • Market Demand: The demand for caregivers in your area can also affect your hourly rate. If there is a shortage of caregivers or a high demand for specific types of care, it may drive up the hourly rates.
Key stats in your state
Source: AARP
Family caregivers:
1.0M
Hours spent per year:
870M
Annual unpaid care value:
$12.3B
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Can you get paid to care for your loved one?

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Tennessee's VA pays caregivers for veterans

Veterans, and the surviving spouses of veterans, have a few options to pay family caregivers.

Veteran Directed Home & Community Based Care in TN

The Veteran Directed Care (VDC) program allows veterans to choose how to direct their monthly care budget. This means that when hiring a caregiver, a veteran can choose to hire his/her family member. The caregiving family member will be paid the hourly rate determined by the VA, typically $8-$21 per hour. VDC is available to veterans of all ages enrolled in VA medical benefits and require skilled services and assistance with activities of daily living.

Veteran Aid & Attendance Pension Benefit in TN

If your veteran loved one requires professional long-term in-home, assisted living, or nursing home care, you may be eligible for Aid and Attendance (A&A). The A&A Pension can provide up to $3,261 per month to pay for care, including to caregiving family members. A&A is an add-on benefit that requires eligibility for the basic VA pension or survivor pension, as well as meeting a disability requirement.

Housebound Pension Benefit in TN

The Housebound Pension benefit provides funds to veterans who are mostly unable to leave their homes. Similar to the A&A benefit, the Housebound Pension can be used to pay family caregivers. The Housebound Pension can be worth up to $1,882 per month, and spouses are unable to be paid as the family caregiver under the Housebound benefit, as spouse income is included in the calculation of the benefit. To qualify for Housebound, a veteran must be limited to his/her house and be eligible for the basic VA pension. Veterans cannot get A&A and Housebound benefits at the same time.

Program of Comprehensive Assistance for Family Caregivers (PCAFC) in TN

The PCAFC is the VA's broadest program targeting family caregivers. The program provides family caregivers with a stipend of up to $2,750 per month, in addition to training, counseling, and respite care. To qualify, the veteran must have been critically hurt or had a serious illness in the line of duty, and require help with at least one activity of daily living.

Find your local VA in Tennessee...

How does the Tennessee Commission on Aging and Disability support family caregivers?

Every state is mandated by the federal government to create support systems for family caregivers. They often reach local communities through Area Agencies on Aging (AAAs).

Area Agencies on Aging are crucial in supporting family caregivers caring for older adults. These agencies typically offer various services, resources, and programs to assist family caregivers in their caregiving responsibilities. Some of the most common ways in which state Agencies on Aging support family caregivers include:

  1. Information and referrals: AAAs provide guidance on local resources, support groups, caregiver training, and respite care options.
  2. Caregiver education and training: They organize programs on caregiving techniques, stress management, healthcare navigation, and legal/financial aspects.
  3. Respite care: They offer temporary relief for caregivers, enabling them to take breaks and attend to their well-being.
  4. Support groups: They facilitate caregiver support groups for sharing experiences, concerns, and learning from others.
  5. Caregiver assessments: AAAs evaluate caregivers' needs and provide tailored support and recommendations.
  6. Counseling and consultation: They offer professional guidance and emotional support for caregivers.
  7. Advocacy and policy development: They advocate for caregiver-friendly policies and programs.
  8. Access to benefits and services: They assist caregivers in accessing benefits and programs like Medicaid, home-based services, and transportation assistance.

How do I find my local AAA?

There are 9 AAAs in Tennessee. Click here find your local AAA in TN.


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Question 1: Who are you caring for?
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Who are you caring for?

Tennessee tax credit for caregiving

What is a tax credit?

Tax credits are a way for the government to incentivize and compensate taxpayers for positive activities. A variety of tax credits cover a wide range of expenses and situations such as education, green energy, and caregiving. A tax credit is a dollar-for-dollar reduction of the income tax you owe. For example, if you owe $4,000 in federal taxes but are eligible for a $3,000 tax credit, your tax bill is $1,000.

What tax credits are available for family caregivers?

The Child and Dependent Tax Credit (CDCTC) is a tax credit earned by caregivers for a percentage of care-related expenses. Eligible expenses must be for the care of a child or dependent in order to enable the taxpayer to work or look for work.

How much can I earn in tax credits for caregiving?

The total tax credit you can claim in Tennessee for caregiving is $1,100.

Additionally, Tennessee matches the federal tax credit up to , which can equate to an extra off your taxes.

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The CDCTC provides a tax credit for a percentage of your eligible caregiving expenses. The maximum CDCTC at the federal level is $1,100.
To get the CDCTC, you must claim your loved one as your dependent on your tax forms. You loved one must qualify to be claimed as a dependent based on a number of criteria. After claiming your loved one as a dependent, you will need to fill out tax form 2441. The tax form requires a clear picture of your care-related expenses that allowed you to work or look for work.
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Other ways to get paid as a family caregiver in Tennessee

Other caregiver pay programs in TN

Here are a few caregiver payment programs in your state that you may want to explore:

Long term care insurance

If your loved one has a long term care insurance policy, that policy may allow for the direction of funds to a family caregiver. To learn if this is an option for you, contact your loved one's insurance company or agent and ask about caregiver benefits.

Employer-sponsored caregiving leave

A growing number of companies are offering to pay employees while they take a leave to take care of a loved one. To learn if this is an option for you, talk to the Human Resources department at your company.

Learn more here

Get paid by family

When your family measures all of the potential costs of care, including nursing homes, in-home nurses, and more, they may recognize that your support is a much more cost-effective option. If there are funds available, you should ask to be compensated for your time and efforts, especially when compared to the costs of the alternatives.

If your family does agree to pay you for your caregiving efforts, you should consult with an attorney to arrange a contract that details your work and wage. This step will create documentation that may be important in the future for reimbursement from Medicaid, health insurance, or assisted living in the future.

Understanding Caregiver Rights and Resources Tennessee

Legal rights and protections for caregivers are essential to ensure their recognition, support, and fair treatment, allowing them to fulfill their caregiving responsibilities while safeguarding their own well-being.


Laws and programs in Tennessee that provide support to family caregivers include the following:

  • Tennessee Caregiver Act: The Tennessee Caregiver Act, enacted in 2016, recognizes the vital role of family caregivers and their importance in the care and well-being of their loved ones. The law requires hospitals to offer the opportunity for patients to designate a caregiver upon admission and provide the caregiver with necessary instructions and information before the patient is discharged.
  • Tennessee Lifespan Respite Care Program: This program, administered by the Tennessee Commission on Aging and Disability, offers respite care services to support family caregivers who care for individuals with special needs or chronic conditions. It provides temporary relief and support to caregivers, allowing them to take breaks and attend to their own well-being.
  • Tennessee CHOICES Program: The CHOICES program is Tennessee's long-term services and supports program for individuals who are elderly, disabled, or have long-term care needs. The program offers a range of services, including home-based care, personal care assistance, respite care, and caregiver support services to help family caregivers in their caregiving roles.
  • Tennessee's Medicaid Program: Tennessee's Medicaid program, known as TennCare, provides health coverage to eligible individuals and offers various programs and services that can benefit family caregivers. These include home- and community-based services (HCBS) waivers, which may provide financial assistance and support for caregiving services.
  • Tennessee Respite Coalition: The Tennessee Respite Coalition is a nonprofit organization dedicated to supporting family caregivers through respite care services. They provide information, resources, and access to respite care programs to help caregivers take much-needed breaks and recharge.
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